Medical Home Care Service - a community-led program

Caring for elderly relatives who suffer from chronic illness and/or Alzheimer's Disease is a huge burden for the very poor of Vijayapuram. The quality of life for the bed-ridden elderly patients can be miserable, as the financial burden of taking relatives to seek medical attention can be too much for some. This Task seeks fresh ideas, links, advice and fund-raising ideas around setting up a community-programme where medical and palliative care can be provided to bed-ridden patients, by locally trained community volunteers and trained medical staff such as Nurses and Doctors. See Joseph's personal letter below to all Neighbours.
Dear neighbours,
My project is medical home care for the poor and the needy old patients especially the Alzheimers patients in my village. First of all I may invite your attention to the fact that in our country there is no practice of Medical Home Care Service for the old patients by Doctors and nurses. So the poor and old including the Alzhiemers patients do not get proper attention and nursing in their homes. The poor families are unable to provide them with nutritious food sufficient medicines and medical care. Even though there are Multi Speciality Hospitals, they are out of reach for the poor as they are expensive and profit motivated. In Government Hospital also there are no facilities for better treatment to the poor due to the corruption among the Doctors and other staff. Considering these financial problems the poor families do not care to take sick old patients to hospital. This is very miserable and sympathetic. The poor people are unable to provide their dear ones with the expensive treatment. In these circumstances the poor old and chronic diseased will become victims of huge debt poverty and disappointment. So it is my great wish to help the poor sick old patients by providing them with free medical care nutritious food, treatment, as well as medical supplies. I was inspired to help the sick and old people by my parents.
But at present, even though I have good will to do all these I require some help out side to run this just like the vehicles need four wheel to run.
Thanking you
yours
Joseph


this is very good idea because first you must have organize your self and the sick persons ,so that even if they is any donation of medication ,the place to keep it and so on.
thanks
daniel
hi Carolyn, Joseph and everybody
Carolyn I found an interesting overview of palliative medicine over the world. NNPC is also named in it and its director Dr K. Suresh Kumar (Institute for palliative medicin in Calicut)
The article is named Palliative Care Toolkit edited by The World Wide Palliative Care Alliance
(pdf document). http://www.helpthehospices.org.uk/our-services/international/what-we-do-...
Webpage of NNPC: http://www.nnpckerala.org/?q=node/4
Article in "The Hindu" about development of NNPC, Dr Kumar s name under it: http://www.hindu.com/2008/01/18/stories/2008011851910300.htm
Found Dr Kumars e-mail adress (by registering at the site of Indian Journal of Palliative Care
http://www.jpalliativecare.com/signup.asp ): skumar90@hotmail.com .
Hi Jospeh, can you please tell me if any of these facilities are nearby to where you live? I hope that we will be able to link in with one of them- or the Pain and Palliative Care Society, under which these clinics sit:
Pain and Palliative Care Society,
St. George Hospital
Vazhakkulam P.O.
Muvattupuzha
Ernakulam District
Tel: 0485-260222
Contact person: Dr. Lal KS
Pain & Palliative Care Clinic,
Alphonsa Hospital,
Murickassery, Idukki District
Tel: 863245
Contact person: Dr. (Sr.) Suguna
Pain andPalliative Care Clinic
KVM Hospital,
Cherthala.
Alapuzha
Tel: 0478 - 813047, 812478
Contact person: Dr. Pyarilal
Palliative Care Clinic,
Assissi Hospice
Punnapra, Alappuzha
E-mail: harrisjt@rediffmail.com
Contact person: Dr. Haris
Hallo Daniel,
Thankyou For your advice. We have got several messages like yours which will give us encouragement and enthusiasm. Welcome your more messages and help to my project.
Thanking you
Joseph
Hello Carolyn,
Thankyou VERY much for your advice and information ragarding Paliative Care at Nilampoor. I also wish to follow them in my task. But as a starter I have to overcome certain difficulties. I hope that I will be able to do it successfully.
From Your and Brams discussions and advice I understand that It is better to have an organization for the efficient work in of my project so I have tookover the charitable organization namely “Human Resource Education and Socio Economic Development Centre”, in which I was also a member and all the other members entrusted me to do the my project as the first one in order to achieve a great vision. It was not yet started functioning due to financial problems. It was registered as No: 427/08/IV at Kottayam sub registrar office and it has no website also. It is meant for the all round development of the society including health service. Medical Home Care Service will be the first project that this organization is going to take up. There is a group of people, including the board members who are willing to do voluntary service to help me in this task.
Would you clarify the meaning of “structure”. Is it about office building, furniture, staff etc or about work details.Dr.Bram and yourself have searched about the palliative care unit in different places. I am very thankful to both of you. The paliative care units you have mentioned at muvattupuzha, Idukki, Cherthala and Alappuzha are far from our locality. So the patients at Kottayam are not able to get there services. Most of the paliative care unit are meant for the cancer patients.
The government projects are never helpful to the poor people who deserve it. There will not be any loyalty to the poor people. The government hospital are better examples for this. So private organization are better in this field.
www.aidindia.org , www.asianfoundation.org.uk , www.emms.org (emmanuel Health Care) have you got any favorable response from the following address.
Thanking you
Joseph
Hello Joseph, it's good that you have the basic support of “Human Resource Education and Socio Economic Development Centre”- it's important that you alone are not trying to achieve your goals. Having other interested and committed people helping you is a very positive step.
My suggestions about the palliative care clinics and also the Alzheimer's Association relate to a very important step in trying to get your project off the ground: that being, you cannot start from scratch Joseph. These 2 groups already have a lot of experience, information and understanding of what it takes to set up a medical home service like the one you wish to start. Without gaining more knowledge and skills from them I really don't know how you will start this project. I personally believe that trying to make contact with them and for you to meet and talk with them would be very beneficial and important.
As I mentioned before, finding an organisation to give you funding, or even a volunteer doctor to attend your home service for 6 months or so- both these things require you to describe a plan, show that you have community support, and show that your "group" contains people who are equipped to run such a program, experienced, trained in palliative care or even Alzheimers care etc.
With these in mind I did investigate the three websites you posted and I can't honestly say that they would be organisations that could help you right now.
Firstly, all the information on AsianFoundation is over 2 years old. There is not evidence on any recent activity in India (mainly dated back to 2005-06). I would have to investigate further to see if they are still active or functioning.
In regards to Emmanuel Healthcare I found that they are currently not working in southern India. This is from their website: Their vision is “Fellowship for transformation through caring”. EHA has now grown to 20 hospitals, 27 Community Health and Development projects covering 400 villages, 4 schools of nursing and 2 primary schools across northern India. EHA provides appropriate and affordable clinical services through a network of 20 hospitals, situated in rural areas of North, North East and Central India. Again, I don't believe they are the right organisation to assist you Joseph because their focus is on actual hospitals and they don't have projects in the South.
Finally, the last one- AID: Association for India's Development is a volunteer movement promoting sustainable, equitable and just development. AID supports grassroots organizations in India and initiates efforts in various interconnected spheres such as education, livelihoods, natural resources including land, water and energy, agriculture, health, women's empowerment and social justice.
They do not currently have any programs in Kerela, however I will write to the contact person of the organisation to ask about how this group may be able to partner with your group. I'll let you know if I hear back from them.
Hallo Carolyn,
Sorry for the delay in sending you the reply. Thank you for your suggestions and advice. My group has planed to contact with the cochin ARDSI and Palliative care centre at Nilampoor as soon as possible.
Also thank you for your investigations for other organizations for funding. The plan and the detailed structure will be send to you after the group discussion. I apologise for the delay due to some personal problems.
Thanking you
Joseph
Hallo Carolyn,
Sorry for the delay in sending you the reply. Thank you for your suggestions and advice. My group has planed to contact with the cochin ARDSI and Palliative care centre at Nilampoor as soon as possible.
Also thank you for your investigations for other organizations for funding. The plan and the detailed structure will be send to you after the group discussion. I apologise for the delay due to some personal problems.
Thanking you
Joseph
Hallo Doctor Bram,
Thankyou for your message regarding they investigation and enquiry about the World Wide Paliative Care and other sites. I wish to contact with Dr. K. Suresh Kumar according to your advice. They are more informative and helpful to me. Our group has decided to contact with the organizations in your messages. Ones again thankyou for your efforts in investigatin the helpfull organisation and their work. Sorry for the delay in sending you the reply due to some personal problems.
Thanking you
Joseph
Hi Joseph, I now have a contact name and email for the ARDSI (Bianca sent them through to me). I will email this gentleman for you and find out who are the best people in the Kochin brnach to follow up.
Regards Carolyn
Hi Joseph I received a favourable reply to my email from the head of ARDSI - Dr roy. Here is part of his email:
Dear Carolyn
thanks for the mail.i am quite happy to hear about the interest by this gentle man from kerala,who would like to establish a home based care programme. while its true that community based palliative care has worked well in cancer care,we still have to fine tune our home based programme.Its true that we have a home based care progrmame in cochin. again this too need more inputs ,particularly getting more volunters
i presume that he is from kottayam.if thats so let him contact mr.matew kannamala,secertary of kottayam chapter,ardsi.
Joseph I will send through to your private email the contact details and the full text of Dr Roy's email. If I could make a suggestion- when you contact him it would be best to try and find out how they could help you start up a home based service. They will not have funding for you but they can provide you with a lot of guidance and support- I think & hope!!
Regards Carolyn
Hai Carolyn,
Thankyou for your investgation and advice as well as for introducing me to Dr. Roy head of ARDSI. In one of my early messages I have pointed out that my contact with Mathew Kanamala was at all satis factory. He said that at present there is no such home care service. He also said that He will contact me later. But till now there is no information. So also I contacted with Grace Hospital which is under ARDSI Kottayam chapter but there also such a programme is not going on at present. So I wish to contact with Dr. Roy as you have adviced. How can I contact him?
Have you any reply fro www.aidindia.org which I have mentioned to you early? May I give you the web addresses of some more organisations to be contacted. If possible please try to. The following are those organisations 1) www.indiasponsor.org 2) www.newmedicalteams.org 3) www.samf.net 4) www.actionaidindia.org
My group and I are waiting to start the medical Home Care Service at the earlist and change the life of the elder people and family a pleasant and peaceful one by creating a Medical Home Care Culture.
Thanking you
best ragards
Joseph
Hi Joseph, it's great that you already made contact with Mr Kanamala- even though he was not able to help you immediately. My suggestion would be to make contact with him again shortly and remind him that you are still interested and that you still want assistance in designing a home based service.
Did you get the email I sent you with the full text from Dr Roy? I sent it to your yahoo email. I will send you Dr Roys email however he is currently away at a conference.
I haven't written to aidindia yet. I'll write to them tonight.
In regards to the information posted by Bram in some earlier posts regarding the Neighbourhood Network in Palliative Care (NNPC) - I have cut and paste some useful info for your below. Again- this group could be very helpful in givng you informaton and assisting in setting up a home-based service since they already do this for the chronically ill and very ill elderly. They also run a training course which is something worth while considering perhpas for a bright student amongst your community who might be able to take on the training and start working in this area. Growing the number of trained volunteers for your service would be a very important step.
Here is the info about NNPC:
NNPC today has a network of about 150 such clinics supported by 10,000 trained volunteers, 85 doctors and 270 nurses looking after about 25,000 patients at any point.
In Malappuram alone, there are 29 palliative care societies, and 25 of them have their own clinics with paid part-time doctors, auxiliary nurses and own homecare vehicles. Each unit serves four to five panchayats.
http://www.nnpckerala.org/?q=node/1
Jospeh, can you contact the director to see what opportunities there are for your group to join with htis large and effective network.
The Director,
National Information Officer in Palliative Care (India)
Institute of Palliative Medicine, Medical College, Calicut
Pin 673008 Kerala, Ph: +91.4953290956
I also found this which I thought was interesting and could provide and opportunity:
Pariraksha is a joint venture by the District Panchayat (local government) in Malappuram and NNPC groups in the district to establish panchayat level home care programs with community participation to support and guide all the chronically and incurably ill patients in the district. The three year program, once established, will be supporting and keeping track of more than 20,000 patients. Institute of Palliative Medicine provides technical support for the project
The Institute of Palliative Medicine is an education, training and research centre for palliative care located in Kozhikode, India. The institute trains health care professionals in palliative care and related medical disciplines. Through its connection with Calicut Medical College and other clinics in the state of Kerala, the institute supports between 4,500 and 5,000 patients per week.
Dr. Suresh Kumar /Dr. Rajashree
Pain and palliative care clinic Medical college, Calicut 673 008 Phone – 0495 2351248,2354897
09349113532 (Dr. Suresh)
09895260192 (Dr.Rajashree)
E- mail pain@vsnl.com
drsuresh.kumar@gmail.com
drrajisuresh@gmail.com
Regards, Carolyn
Hi Joseph, I took a look at some of the websites you mentioned on a post about 2 weeks ago.
Whilst they are good resources, they are not really ones which you can rely on at this stage of your project. The reason for this, I believe, is because many of these sites offer volunteer opportunities
(in a health/medical setting) for organisations that already have some kind of health facility, or program. Many of the organisations are established NGO's (Non- government organisations) or Christian Missions etc.
I think trying to find a volunteer is one or two steps too early for your program. You actually need to have a program structure. Something you can "sell" to volunteers, other professional groups, funding agencies etc. Right now you have an idea- but now you need to put that idea down on paper in the form of a plan.
My suggestion is that you and your group need to start writing up a plan of what it is you want to do. In this plan you need to list what is necessary to make that plan occur. This includes, people, funding, organisation structure, a van, medicine, other equipment, training needs etc. It would also be ideal to consult a small group from your local community about their needs/wants/wishes in regards to this home-care service. You know what YOU want- but what do the other people in your community want? Asking these questions will help you develop your plan. Many projects here on Nabuur have developed their project plans from scratch so there is a lot of expertise here and people will be able to help you start this plan.
Below is a summary of the websites I looked up and what I found.
https://www.hvousa.org/
https://www.hvousa.org/ohvo.cfm
HVO sends qualified professionals overseas to train local health care providers in: anesthesia, burn management, dentistry, dermatology, hand surgery, hematology, internal medicine, oral and maxillofacial surgery, orthopaedics, pediatrics, nursing education, physical therapy and wound management. These highly skilled and experienced volunteers come from both private practice and university settings, with a significant number of retirees as well.
They do have programs in India but not in dementia care or palliative care.
http://www.imva.org/
Again- an org that provides a lot of useful information about what it means to volunteer in a health centre. It has a long list of organizations which are offering volunteer placements. Again, home medical services would need to be well established- have a program underway, before a volunteer can be placed here
http://www.missionfinder.org/medical.htm This website is about medical students or medical professionals who are looking to work on in areas around the world- especially existing Christian missions. They would require the placement to be with an established NGO or Mission. Medical home service is not at this stage yet.
Finally- I wrote to AID Inida however I have not received a response yet.
Carolyn
Hai Carolyn,
Thankyou for your message. Our group has read it and we are framing the details as you have mentioned in your message. The Structure of the project and the other details will be send to you at the earliest. As you have mentioned earlir, we have not it received the email details of Doctor Roy. Again thankyou for your great effort and guidance in relation to our project. We have selected one to be send for the training programme as you have adviced.
Thanking you
Best Regards
Joseph